Tuesday, 22 June 2010

Please take 5 mins to help !!

I suffered my first dislocation of my knee when I was about 14, but was always 'double jointed' as a kid and like most never thought anything of it. I then suffered my second dislocation two years ago and found out that in between the two dislocations I was constantly suffering from sublux dislocations. Only recently I have come across a condition called 'Hyper mobility / EDS' and am trying to find a Doctor here in the UK that is fully aware of this condition.

Ehlers-Danlos Syndrome (EDS) is a genetic connective tissue (collagen) disorder that causes debilitating pain, joint dislocations, organ/arterial rupture/dissections and has resulted in numerous deaths from a lack of knowledge. EDS Today was born in 2000, out of dire necessity to help those with EDS acquire the latest, most upto date medical information and contacts in one resource guide, which is written and by those that know and suffer with this condition. Chase Community Giving are holding an event where you can decide if we will be awarded with a much needed $250,000 funding to help further raise awareness, treatment and possible cure for this condition which is misdiagnosed so frequently and this misdiagnosis has led to deaths, misreporting of child abuse due to the fact that we bruise like the push of a button, loss of babies during pregnancy due to rupture the list goes on...

Please click on the Chase link at the top of my blog, register that you like Chase community and use your two votes to help us stay in the number one spot and pass the link to your friends we really do need your help x I thank you with all of my heart x


  1. wishing you luck, I will definately vote :)

  2. thank you so much literally every vote counts xx

  3. Much Link ♥

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